Last updated:
29th March 2024
Services for children with life-limiting conditions
Some children have conditions that mean they are unlikely to reach adulthood. Families need special help and support to come to terms with the situation, and to cope with the demands of caring for a very sick child.
Hospice care
Hospices work with children and their families and offer a variety of support services including outreach and respite care.
Many families will also receive support from PINS or community nurses at some stage during their child’s treatment. Speak to your paediatrician for more information.
The following hospices provide short breaks and palliative care for children aged 0 to 18 years.
Helen and Douglas House - your local children's hospice
Bereavement support services in hospitals
Hospitals have a bereavement support service for families who have lost a child whilst in hospital. The services provide support and guidance to the parents and carers. A healthcare professional at the hospital will be able to provide you with details about the service or see the hospital website for more information.
National bereavement helplines
If you are struggling with the loss of your child, there are people you can talk to.
The Child Death Helpline: call 0800 282 986
The Cruse Bereavement Care freephone helpline: call 0808 808 1677
